Websites

ENDOMETRIOSIS RELATED WEBSITES

Updated: May 16, 2009

• Endosupp: A support site with information about Endometriosis, latest news and research as it happens!
• The Endometriosis Association
• Endometriosis.org (home of the Endometriosis: The Inside Story”
• Endometriosis Research Center
• Endometriosis Center of the San Francisco Bay Area
  (the San Francisco Bay Area ERC Chapter)
• Medline Plus – Endometriosis
• National UK Endometriosis Society
• Endometriosis Foundation of America
• Current Endo studies
• Endometriosis on MedPedia. (I’m not sure I agree with how they presented all of the info, but none-the-less it has some interesting statements and links)

Endometriosis Blogs

• Endometriosis: The Silent Life Sentence
• Chronic Healing: Her goal is to help patients and their loved ones find (and give) support, information, and resources in regard to chronic conditions.
• Endometriosis and Health Care
• My Endometriosis Story: Here is my journey of discovering that I have endometriosis, finding a doctor who would help me and seeking a way to solve the problem and not just mask the symptoms.
• Endometriosis Journey: A New England chick’s journey and support for women with endometriosis.
• Endo en Vogue: …because 5.5 million women is more than a trend. I am a twenty-something recently diagnosed with endometriosis. Welcome to my blog where I will be posting my personal experiences and resources I have found helpful in dealing with endo.

Online Endometriosis Communities

• Endometriosis Research Center Message Board
• Girl Talk For Teenagers with endometriosis
• Endoangels
• EndoNatural
• WeAreEndo This is new as of 2009 and highly recommended. join our online conversations here: http://www.weareendo.org/tcendosupport
• Endo GirlsThe ongoing saga of bloody pain

Chronic Pain

• American Academy of Pain Management – find a professional in your area
• Pain Center
• The International Pelvic Pain Society
• American Pain Society
• American Chronic Pain Association

Medications

• U.S. Food and Drug Administration — Office of Women’s Health
• Educate yourself about your medications

Products

• Relax Pack – A product whose cover is of organic material, the owner uses flax seed. It retains moisture (as opposed to some who use grains and dry out quickly) and she uses natural lavender and other herbal ingredients with aromatherapy properties. Most impressive, she offers a completely scent-free version for those that are sensitive to scented items.
• EndoFEMM – Designed specifically for women and girls. Seven compartments to keep heat/cold even throughout the pelvic region. Excellent heat retention. Washable covers and adjustable straps available

Women’s Health Sites

• American Academy of Obstetrics and Gynecology — ACOG
• American Society for Reproductive Medicine (ASRM)
• The National Women’s Health Information Center
  (Spanish & Chinese language sections)
• OBGYN.Net — The Women’s Pavillion
• National Women’s Health Resource Center
• Women’s Health Information (UK Site)
• Women’s Health Initiative
  (Information from the National Institute of Health)
• Centers for Disease Control and Prevention (CDC)
  (Women’s Health Subjects)
• The Center for Young Women’s Health
• Women’s Health on WebMD
• North American Menopause Society
• NIH National Center for Complementary and Alternative Medicine

Pregnancy and Breast-Feeding

• The Baby Center Web Site
• Pregnancy, Breast-Feeding, and Travel
• www.breastfeeding.com
• www.breastfeedingonline.com

Support for partners, spouses, and family

• Well Spouse Association

The WSA Mission Statement
The Well Spouse Association, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.  We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues “well” spouses face every day. 

To achieve this mission the Well Spouse Association:

• coordinates a national network of Support Groups
• facilitates a Mentor program and Round Robin letter writing groups
• publishes a newsletter (Mainstay) and e-newsletter (Member Minute)
• hosts a website (www.wellspouse.org) with resources for coping and survival skills, which includes an on-line chat forum for spousal caregivers
• organizes regional respite weekends and a national conference for caregivers
• provides continuing support for members whose spouses have died
• advocates on behalf of spousal caregivers
• seeks out new initiatives to help caregiver spouses and their families cope with the emotional and financial stresses associated with chronic illness and/or disability